Nick’s MND journey

Nick’s MND journey 1

Nick’s MND journey 2

Christina’s 43 year old father Nick Lias has been diagnosed with Motor Neurone Disease (MND)- a life threatening illness, which unfortunately has no cure. Christina has set up a funding page to try and raise money to send her father overseas to receive treatment, which will hopefully prolong the disease.

“Throughout the 18 years of my life I’ve been blessed with the best dad any one could have ever hoped for, caring, kind, loving and very funny. Who would have thought that a month ago we were to receive the worst news ever.

My dad has been diagnosed with Motor Neurone Disease and unfortunately there is no cure yet. Symptoms and the rate of progression of this disease varies from person to person and doctors give an average life expectancy of 3-4 years.

MND is a disease in which the nerve cells that control the muscles that enable us to speak, breathe and swallow to deteriorate and die, which causes weakness in the muscles that gets worse and eventually leads to paralysis. We are devastated with the news and there are no words to describe how this has changed our lives.

Nick’s MND journey 3

My dad Nick Lias at only 43 years of age is a husband, father, son, brother, brother in law, cousin and friend to many. He has two children, myself and my sister Tiani aged 13 and his loving wife Penny. He has a heart of gold and humour, full of jokes and laughter with a happy personality and loved by all. With receiving this bad news my dad is unable to lift his leg properly and drags it at times, he has slight slurring and slower speech which we have been noticing is getting worse. My dad has been told to live his life to the fullest, we don’t know when this terrible disease will take over.

Our journey begins, we will be travelling overseas due to some positive feedback on stem cell treatment. There are treatments that can help my dad’s quality of life and we will do whatever it takes to get these treatments, which will help prolong this disease. Any help would be appreciated.

Please help share my dad’s story and support our journey.”

GCT Team

This article was researched and written by a GCT team member.